Monday, January 5, 2015

Maybe I could do this again

This last year has been a whirl wind of emotions.
A year ago tomorrow we lost my brother, my best friend in a tragic accident. He died in Maryland driving his 18 wheeler. It has by far been the hardest thing I've ever dealt with. It was the first death my children have had to deal with. Easy isn't a word that could describe life after a death of a sibling.
Over the summer we dealt with our oldest having vaso-vagal syncope. Basically he can dehydrate fast and pass out. His symptoms vary and we are still learning a year after diagnosis. This was our first summer with the diagnoses.
We also finally got an Autism diagnosis. PSP not otherwise specified is what's in the papers. He's high functioning but has a lot of sensory issues. We are working on helping him with those.
We also GOT MARRIED!!!  Yep after almost 10 years and 2 kids we finally got married. It was a wonderful ceremony. Our Pastor kept it short, on point and special. He's watched us grow as a family. We also had numerous special needs children in the church so short was perfect. Plus standing for any longer than 25 minutes may have been tough.
We only dealt with a few tears. Oh who am I kidding. I cried through the entire thing! He mentioned my brother and how the loss of him effected everyone.
I had planned with my brother awhile back for him to walk me down the aisle. Well Drake did. And it was so special. Dalton walked sis down and I met up with them at the front of the church.
We had a fabulous little picnic reception outside at the church. There was a slip n slide set up for the kids and everyone ate and chatted away. It was perfect!
Then came the worry of school starting. Dalton's new teachers and new building and no one knew of his new diagnosis.
We met up with his classroom teacher who is utterly amazing and Dalton adores him.
When I finally met up with his learning support teacher I knew we were in for a fabulous year. She's a caring and loving teacher. If he needs a hug he can just ask her and she will hug him. He's found his Mother figure in school.
Drake started kindergarten and wow! It's been an amazing year for him as well. He has the same teacher Dalton did. She's just amazing! She's on point and catches things most teachers wouldn't.
In October we finally got to go on our "Honeymoon". We went to Pigeon Forge, TN to a couples retreat. It was awesome. We learned how to love each other more through Christ. We did tourist things and just had a blast! We even rode horses! I haven't ridden since I was a teen!
Some time while we were there I broke the 5th metatarsal in my clubfoot. Yep. I did. Haha! No idea on when or how.
Christmas was low key and awesome. The kids got the things the asked for and we had an amazing break. There were many emotional moments though. The first year after a death you deal with all the firsts. I handled them really well. Helped Mom through them.
Now we are dealing with the year anniversary. It seems to be effecting me mentally more than I want it to.
You see my brother died 6 days before Dalton's 8th Birthday. Great thing to have hanging over your birthday huh? We work hard on not letting it last year. This year I'm trying too. It isn't easy but I'm trying! With not being able to sleep it isn't easy to not be moody.
Anyway, there's been a lot of up and downs this year. The ups have been amazing!
I think this blog may have a turn and be more about life with children with special needs.
A child diagnosed with Autism, bi-polar,  adhd and anxiety makes for some rough days. But it also makes for amazing times.
Currently we are dealing with insurances. They refuse to cover his need for a weighted blanket. His dr deems it medically necassary. The insurance says there's no proof they help.
Lord help me find a way to make this work. We are a limited income family and we need things to help him make life a bit easier on him!

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